
In my work, I get to participate in building a deep sense of community across distance. People can forge very strong bonds even when they don’t see each other in person.
This takes place over the landscape of the epilepsy community we serve. At the Epilepsy Foundation of Michigan, we serve our whole state geographically, and many members of our community do not drive. For this reason, we create circles of support across distance, and you may be surprised how deep a phone call or Zoom meeting can go. In fact, I’ve watched these be transformative.
This is always on display in moments when our community members do get meet one another, and I was touched by one of these moments last weekend when we held our annual Metro Detroit Stroll for Epilepsy. This is our largest event each year, and it always feels like a family reunion.
For some, it’s a sacred introduction for the first time: Case in point, at one moment, I realized that two members of our phone-based support group were nearby each other. “T, this is C!” I said (not their name letters), and I am telling you, T ran over, scooped C, and they hugged each other in the sweetest embrace that must have lasted 40 seconds.
They have never met in person. But they know each other, and they know each other well. In fact, they love each other well, and you could see this in what must have been the longest hug that happened at the Stroll.
These bonds matter. Community matters. And we can forge these relationships far and wide.
— Renee Roederer
Awww, that was so sweet! Seeing him person after talking to him for hours and hours, not knowing who one of my closest friends looked like. I knew he had seizures, and we both thought that sucked! He would listen to me whine over stupid things, yet he would help me get over it by talking. And vice versa. I didn’t want to let him go!!! Now being back together on the phone, I can’t wait!!! Renee can move mountains for surprises! Much love to you for the love you give us,
Unknown, Pizza
Love you so much, Unknown, Pizza.
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